Not Dead Yet Comment on Hospice and Palliative Nurses Association’s Statement on “MAiD”

Not Dead Yet is a national disability rights organization focused on combatting disability based healthcare discrimination, particularly in the context of advanced or terminal illness. We are extremely disappointed that HPNA [Hospice and Palliative Nurses Association] would consider adopting a “stance of engaged neutrality” regarding whether assisted suicide should be permitted or prohibited. We urge HPNA to reverse course.

Moreover, although the proposed position statement [download available here] claims neutrality, its content reads like a defense and sometimes an outright promotion of a public policy of assisted suicide. Although only 11 jurisdictions have legalized the practice, HPNA’s statement says, “All hospice and palliative nurses should develop competence and mastery regarding MAiD in the domains of education, clinical practice, research, advocacy, and leadership.” HPNA appears not to have considered the views of either palliative care experts or disability rights activists who oppose the practice. The statement includes only limited references and minimal tolerance toward nurses who object to the practice.

HPNA tries to explain why assisted suicide should be referred to as “medical aid in dying” or MAiD for short. These are marketing terms. As Dr. Ira Byock, a palliative care specialist has written, “‘aid in dying’ makes it sound like giving someone a lethal drug is an extension of hospice and palliative care. It is not.”

Anita Cameron: "Black People, Wake Up and Remember Our History"

As we in the Black community celebrate freedom, liberation, and life on Juneteenth, there is a movement afoot that will endanger the lives of the most vulnerable in our community.

This dangerous movement is the push for legalization of assisted suicide, sometimes called medical assisted suicide, across the United States.

Assisted suicide is when someone, usually terminally ill, with six months or less to live, makes a request for a lethal dose of medication prescribed by a physician or medical provider.  After the waiting period, if there is one, the provider issues the prescription, the person or someone designated by them picks it up, and the medication is ingested by the person to whom it is prescribed. There is no doctor or witness required to be present .... Currently, assisted suicide is legal in ten US states and the District of Columbia. As of this year, 2024, 20 states have either introduced assisted suicide legislation or have expanded bills that have already passed.

"My Mum Didn't Die"

Good morning. I’m Anita Cameron, Director of Minority Outreach for Not Dead Yet, a national, grassroots disability organization opposed to medical discrimination, healthcare rationing, euthanasia and assisted suicide.

Assisted suicide laws are dangerous because though these laws are supposed to be for people with six months or less to live, doctors are often wrong about a terminal diagnosis. In 2009, while living in Washington state, my mother was determined to be at the end stage of chronic obstructive pulmonary disease. I was told her death was imminent, that if I wanted to see her alive, I should get there in two days. She rallied, but was still quite ill, so she was placed in hospice. Her doctor said that her body had begun the process of dying.

Though she survived 6 months of hospice, her doctor convinced her that her body was still in the process of dying, and she moved home to Colorado to die.

My mum didn’t die. In fact, six weeks after returning to Colorado, she and I were arrested together in Washington, DC, fighting for disability justice. She became active in her community and lived almost 12 years!