New York Times: Diane Coleman has Died

https://www.nytimes.com/2024/11/20/us/diane-coleman-dead.html?smid=url-share

By Clay Risen, published 11/20/2024, updated 11/22/24  

Diane Coleman, a fierce advocate for disability rights who took on Dr. Jack Kevorkian, the right-to-die movement and the U.S. health care system, which she charged was responsible for devaluing the lives of Americans like her with physical and mental impairments, died on Nov. 1 at her home in Rochester, N.Y. She was 71. [Diane pictured right with sign stating "freedom rider"]

Her sister Catherine Morrison said the cause was sepsis.

Ms. Coleman was born with spinal muscular atrophy, a disorder that affected her motor neurons. She was using a wheelchair by 11, and doctors expected her to die before adulthood.

Instead, she blossomed, graduating as valedictorian from her high school and receiving a joint J.D.-M.B.A. from the University of California, Los Angeles, in 1981.

It was only after several years of working as a consumer protection lawyer that she shifted her energies to disability rights, joining a flourishing movement that was pushing for anti-discrimination laws at every level of government, including improvements on transit and in buildings.

Ms. Coleman was a member of Adapt, considered one of the most militant disability rights groups. She participated in scores of protests, blocking the entrances to buildings where conferences were held or government offices were housed. She was arrested more than 25 times.

Ian McIntosh Appointed Interim Executive Director Of Not Dead Yet

Rochester, NY, January 13, 2025 – A Brief Note on behalf of The Board of Not Dead Yet:  

With the sudden passing of Not Dead Yet’s irreplaceable Founder, President and CEO, Diane Coleman , the Board of Not Dead Yet (NDY) was tasked with ensuring that her legacy continues into the next phase of this important mission, decades in the undertaking. We worked over a period of months, to select and appoint Ian McIntosh [pictured here] as Interim Executive Director. In this unprecedented and challenging time, Ian will provide leadership and direction while stewarding Not Dead Yet’s constant critical mission to oppose the legalization of assisted suicide and euthanasia as deadly forms of disability discrimination.

Ian joins Not Dead Yet having previously served as the Director of Disability Outreach for the Patients Rights Action Fund (PRAF), a leading, national, secular, non-partisan leader defending the rights of patients, people with disabilities, our elders, and the poor from the threat of legalized assisted suicide and euthanasia.

Diane Coleman, Fierce Foe of the Right-to-Die Movement, Dies at 71

Photos in linked article:  https://www.nytimes.com/2024/11/20/us/diane-coleman-dead.html

Her fight for disability rights included founding a group called Not Dead Yet, which protested the work of Dr. Jack Kevorkian and others.

By Clay Risen

Published Nov. 20, 2024, updated Nov. 21, 2024

Diane Coleman, a fierce advocate for disability rights who took on Dr. Jack Kevorkian, the right-to-die movement and the U.S. health care system, which she charged was responsible for devaluing the lives of Americans like her with physical and mental impairments, died on Nov. 1 at her home in

Rochester, N.Y. She was 71.

More on Diane Coleman

Over the weekend, Diane Coleman [pictured right] of Not Dead Yet passed away. She was an icon in our movement and – personally – my mentor and friend.

When you met Diane, you immediately recognized that she was brilliant, with the rare exception of her vocational rehabilitation counselor. Her VR counselor apparently found Diane a job counting commercials, so she could work and wouldn’t even need to leave the house. Diane had other plans which meant moving to California and getting both a law degree (juris doctor) and a master’s in business administration. Armed with a JD/MBA, Diane worked for the California Department of Corporations as an attorney and volunteered her time for the disability rights and independent living movements. She served on the board of the Westside Center for Independent Living (now called Disability Community Resource Center) and used her vacation leave to participate in ADAPT actions which were focused at the time on securing access to public transportation. Diane was an ADAPT activist and organizer who – with Tom Olin and Lillibeth Narvarro – started the Los Angeles chapter of ADAPT in 1987.

Diane’s activist heart took her to (just outside) Nashville, Tennessee with Tom Olin, Carol Gill and Larry Voss. When she left her position in California, her coworkers sent her off with a gift of a bullhorn and handcuffs!

In Memory of Diane Coleman (Pictured Below)

https://www.newcomerrochester.com/obituaries/diane-coleman

The family will receive friends, 1 pm -4 pm Sunday November 10, 2024 at New Comer Cremations and Funerals, 6 Empire Blvd. (next to Donut's Delight). A funeral service will begin promptly following visitation at 4 pm.

Diane has been an accomplished person from an early age! Diane, shortly after birth was diagnosed with some form of Muscular Dystrophy. She defied all odds after telling her parents William and Dolores Coleman that she might not live past her teens. 

Diane went on to Graduate from Loy Norris High School as Valedictorian of her class. She then went on to University of Illinois to continue her studies. While there she lived independently and learned to drive a handicapped equipped van! Her parents were in amazement with all of her accomplishments! 

But then she continued by moving on to Los Angeles, California and attended UCLA and Graduated with her Law Degree. Then went on to pass the California State Bar. Shortly after, she went on to work for the State of California as a Lawyer for about 12 years. 

Diane became active in the disability rights movement with the group ADAPT. She was a big advocate in getting lifts on all buses! She was involved in many protests, being arrested many times for the cause.

Diane Coleman, Leader of Not Dead Yet, has Died

By Alex Schadenberg, Executive Director, Euthanasia Prevention Coalition *

It is very sad news to announce that the great Diane Coleman [pictured here] has died. Diane founded Not Dead Yet in 1996 and was the President and CEO of Not Dead Yet until her death. The fact that other Not Dead Yet organizations world-wide were founded in conjunction with Not Dead Yet in America proves that her activities had world-wide significance.

I have always had incredible respect for Diane's direction, understanding of the issues and her leadership skills. Diane led a group of people who differed greatly and yet she effectively enabled them to work together.

Not Dead Yet, under Diane's leadership, was the most effective organization in preventing the spread of assisted suicide in America.

Diane and Stephen Drake  

Diane Coleman and Stephen Drake spoke at some of the earlier EPC [Euthanasia Prevention Coalition] conferences that Not Dead Yet co-sponsored.

Not Dead Yet [was] incredibly successful during the Massachusetts assisted suicide voter initiative in 2012, Diane worked with John Kelly to establish Second Thoughts Connecticut as the disability rights voice - voting NO on question 2. This decision was a decisive factor in the defeat of the assisted suicide voter initiative in 2012.

Not Dead Yet Comment on Hospice and Palliative Nurses Association’s Statement on “MAiD”

Not Dead Yet is a national disability rights organization focused on combatting disability based healthcare discrimination, particularly in the context of advanced or terminal illness. We are extremely disappointed that HPNA [Hospice and Palliative Nurses Association] would consider adopting a “stance of engaged neutrality” regarding whether assisted suicide should be permitted or prohibited. We urge HPNA to reverse course.

Moreover, although the proposed position statement [download available here] claims neutrality, its content reads like a defense and sometimes an outright promotion of a public policy of assisted suicide. Although only 11 jurisdictions have legalized the practice, HPNA’s statement says, “All hospice and palliative nurses should develop competence and mastery regarding MAiD in the domains of education, clinical practice, research, advocacy, and leadership.” HPNA appears not to have considered the views of either palliative care experts or disability rights activists who oppose the practice. The statement includes only limited references and minimal tolerance toward nurses who object to the practice.

HPNA tries to explain why assisted suicide should be referred to as “medical aid in dying” or MAiD for short. These are marketing terms. As Dr. Ira Byock, a palliative care specialist has written, “‘aid in dying’ makes it sound like giving someone a lethal drug is an extension of hospice and palliative care. It is not.”

"My Mum Didn't Die"

Good morning. I’m Anita Cameron, Director of Minority Outreach for Not Dead Yet, a national, grassroots disability organization opposed to medical discrimination, healthcare rationing, euthanasia and assisted suicide.

Assisted suicide laws are dangerous because though these laws are supposed to be for people with six months or less to live, doctors are often wrong about a terminal diagnosis. In 2009, while living in Washington state, my mother was determined to be at the end stage of chronic obstructive pulmonary disease. I was told her death was imminent, that if I wanted to see her alive, I should get there in two days. She rallied, but was still quite ill, so she was placed in hospice. Her doctor said that her body had begun the process of dying.

Though she survived 6 months of hospice, her doctor convinced her that her body was still in the process of dying, and she moved home to Colorado to die.

My mum didn’t die. In fact, six weeks after returning to Colorado, she and I were arrested together in Washington, DC, fighting for disability justice. She became active in her community and lived almost 12 years!