Not Dead Yet Comment on Hospice and Palliative Nurses Association’s Statement on “MAiD”

Not Dead Yet is a national disability rights organization focused on combatting disability based healthcare discrimination, particularly in the context of advanced or terminal illness. We are extremely disappointed that HPNA [Hospice and Palliative Nurses Association] would consider adopting a “stance of engaged neutrality” regarding whether assisted suicide should be permitted or prohibited. We urge HPNA to reverse course.

Moreover, although the proposed position statement [download available here] claims neutrality, its content reads like a defense and sometimes an outright promotion of a public policy of assisted suicide. Although only 11 jurisdictions have legalized the practice, HPNA’s statement says, “All hospice and palliative nurses should develop competence and mastery regarding MAiD in the domains of education, clinical practice, research, advocacy, and leadership.” HPNA appears not to have considered the views of either palliative care experts or disability rights activists who oppose the practice. The statement includes only limited references and minimal tolerance toward nurses who object to the practice.

HPNA tries to explain why assisted suicide should be referred to as “medical aid in dying” or MAiD for short. These are marketing terms. As Dr. Ira Byock, a palliative care specialist has written, “‘aid in dying’ makes it sound like giving someone a lethal drug is an extension of hospice and palliative care. It is not.”

New York Bar Association and Medical Society Ignore Dangers of Legalized Assisted Suicide

By Lisa Blumberg (pictured here).

The New York State Bar Association (NYSBA) adopted a resolution in 2023 that supports the provisions of the assisted suicide bill before the legislature. This position is based on a report by its Task Force on Medical Aid in Dying. The report is extensive but seems more of defense of assisted suicide rather than a balanced inquiry into the myriad issues raised by its legalization.

During the summer last year, Not Dead Yet had learned of the NYSBA Task Force and requested an opportunity to speak to which the chair replied, “I'll be in touch a little later to settle on date for you to visit.” Sometime later, NDY inadvertently learned that David Leven, a leader in End of Life Choices New York, made a presentation to the Task Force. Rather than scheduling a comparable opportunity for opponents, the Task Force scheduled an open forum in November with a limited number of slots and did not notify the NY Alliance Against Assisted Suicide, a coalition of doctors, disability advocates and other opponents of assisted suicide laws. By the time word reached the Alliance, only three speaking slots remained available, the rest (over 20) taken by proponents. Later in December, another panel of prominent assisted suicide advocates presented to the Task Force but, once again, no expert panel from the opposition.